{"id":17887,"date":"2019-01-04T20:13:27","date_gmt":"2019-01-05T01:13:27","guid":{"rendered":"https:\/\/wawa-news.com\/?p=17887"},"modified":"2019-01-04T20:26:44","modified_gmt":"2019-01-05T01:26:44","slug":"remembering-our-friend-eddy-lefrancois-als-canada-ambassador","status":"publish","type":"post","link":"https:\/\/wawa-news.com\/index.php\/2019\/01\/04\/remembering-our-friend-eddy-lefrancois-als-canada-ambassador\/","title":{"rendered":"Remembering our Friend, Eddy Lefran\u00e7ois, ALS Canada Ambassador"},"content":{"rendered":"

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From ALS Canada<\/p>\n

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Je vous encourage \u00e0 partager et d’allumer Facebook avec le logo “Let’s Roll” et la date d expiration tatou\u00e9 sur l avant bras d Eddy K. Lefran\u00e7ois en signe de reconnaissance pour ses efforts \u00e0 trouver une cure pour la SLA.
I am encouraging everyone to light up Facebook with Eddy’s Let’s Roll logo and his tattoo expiry date in order to recognize his efforts to find a cure for ALS.
Let’s Roll for Eddy http:\/\/www.lets-roll.ca\/About_Me.html<\/a><\/p><\/div>\n

We are heartbroken to share with you that Eddy Lefran\u00e7ois, ALS Canada Ambassador, passed away earlier today \u2013 a tremendous loss for the ALS community of a champion, advocate and friend.<\/span><\/p>\n

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Diagnosed with ALS in 1992 with a prognosis of three to five years to live, Eddy became a force within the ALS community, showing the world that he would not be defined by his disease. A rare example of someone who lived well beyond the average life expectancy of someone diagnosed with ALS, Eddy approached each day as an opportunity. In 2013, he defiantly had the date 04.97 tattooed on his arm as a daily reminder of his achievement living beyond his \u201cexpiry date.\u201d With no fear in his heart, he travelled around North America and parts of Europe working on his bucket list, rolling across all terrains into adventures that included a Stanley Cup final game, whitetail deer hunt, and indoor skydiving.<\/p>\n

Eddy worked tirelessly to raise awareness of the disease and mobilize others to support the cause. In his words, \u201cI may not control the fact that I have ALS, but I control my actions to make people aware that ALS is a terrible disease to live with\u2026 anybody can develop it at any time; we have to work together for \u2018A Future Without ALS.\u2019\u201d<\/p>\n

Even after the disease took away his ability to speak, Eddy used social media and his personal website to connect with people near and far. He was widely seen as a supportive voice and champion to people living with ALS, often being contacted by those across Canada and around the world to share his perspective and experience, along with his motto \u201clet\u2019s roll\u2026\u201d. Quick with a joke and his familiar grin, he was a reminder to all of us to live life with gusto and make every day count.<\/p>\n

Farewell, notre ami, we are fortunate to have known you and are grateful for all you have done in support of our shared cause.<\/p>\n

You will be remembered always. Let\u2019s roll\u2026<\/p>\n

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C’est avec le c\u0153ur bris\u00e9 que nous vous annon\u00e7ons le d\u00e9c\u00e8s d’Eddy Lefran\u00e7ois, ambassadeur de la Soci\u00e9t\u00e9 canadienne de la SLA, plus t\u00f4t aujourd’hui. Il s’agit d’une immense perte pour la communaut\u00e9 de la SLA. Il \u00e9tait un champion et un d\u00e9fenseur de la cause, et un ami.<\/p>\n

Apr\u00e8s avoir re\u00e7u un diagnostic de SLA en 1992 avec un pronostic de trois \u00e0 cinq ans, Eddy est devenu une v\u00e9ritable force au sein de la communaut\u00e9 de la SLA, en montrant au monde qu’il ne serait pas d\u00e9fini par sa maladie. Eddy est l’une des rares personnes qui ont v\u00e9cu bien au-del\u00e0 de l’esp\u00e9rance de vie moyenne des gens atteints de la SLA, et il voyait chaque nouvelle journ\u00e9e comme une opportunit\u00e9. En 2013, il s’est fait tatouer par bravade la date 04.97 sur le bras, pour se souvenir d’avoir r\u00e9ussi \u00e0 vivre au-del\u00e0 de sa \u00ab date d’expiration \u00bb. Avec courage, il a parcouru l’Am\u00e9rique du Nord et des r\u00e9gions de l’Europe pour cocher les \u00e9l\u00e9ments de sa liste de choses \u00e0 faire avant de mourir, roulant vers de nombreuses aventures dont un match de la finale de la coupe Stanley, la chasse au cerf de Virginie et de la chute libre int\u00e9rieure.<\/p>\n

Eddy a travaill\u00e9 sans rel\u00e2che pour sensibiliser le public \u00e0 la maladie et mobiliser les gens en soutien \u00e0 la cause. Comme il l’a d\u00e9j\u00e0 dit : \u00ab Je ne contr\u00f4le peut-\u00eatre pas le fait d’avoir la SLA, mais je contr\u00f4le mes actions pour sensibiliser le public au fait que la SLA est une maladie terrible \u00e0 vivre… tout le monde peut la d\u00e9velopper, \u00e0 tout moment; nous devons travailler ensemble pour un Avenir sans SLA \u00bb.<\/p>\n

M\u00eame apr\u00e8s que la maladie lui eut ravi sa capacit\u00e9 \u00e0 parler, Eddy a utilis\u00e9 les m\u00e9dias sociaux et son site Web personnel pour tisser des liens avec les gens, ici comme ailleurs. Il \u00e9tait largement reconnu comme un soutien et un champion pour les personnes qui vivent avec la SLA; de nombreuses personnes de tout le Canada et du reste du monde communiquaient souvent avec lui pour partager son point de vue et ses exp\u00e9riences, sans oublier sa devise \u00ab On l\u00e2che pas… \u00bb.
\nFarceur et affubl\u00e9 de son sourire familier, il \u00e9tait un rappel pour nous tous que la vie doit \u00eatre v\u00e9cue avec enthousiasme et que chaque jour compte.<\/p>\n

Au revoir, notre ami, nous sommes chanceux de t’avoir connu et reconnaissants pour tout ce que tu as accompli pour notre cause commune. Nous nous souviendrons toujours de toi.<\/p>\n

On l\u00e2che pas\u2026<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

  From ALS Canada We are heartbroken to share with you that Eddy Lefran\u00e7ois, ALS Canada Ambassador, passed away earlier today \u2013 a tremendous loss for the ALS community of a champion, advocate and friend. Diagnosed with ALS in 1992 with a prognosis of three to five years to live, Eddy became a force within …<\/p>\n","protected":false},"author":3,"featured_media":17889,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[41],"tags":[1549,1882],"class_list":["post-17887","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","tag-eddy-lefrancois","tag-lets-roll"],"publishpress_future_action":{"enabled":false,"date":"2026-05-17 09:50:27","action":"change-status","newStatus":"draft","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/posts\/17887","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/comments?post=17887"}],"version-history":[{"count":3,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/posts\/17887\/revisions"}],"predecessor-version":[{"id":17892,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/posts\/17887\/revisions\/17892"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/media\/17889"}],"wp:attachment":[{"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/media?parent=17887"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/categories?post=17887"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wawa-news.com\/index.php\/wp-json\/wp\/v2\/tags?post=17887"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}